A truth I have learned: chronic illness means being chronically late. With any chronic condition or pain, it is easy to feel like the disease has control, not you. My ability to arrive on-time is certainly one of those areas. To be fair, I was never a punch-in early kind of gal, but my perpetual lateness has multiplied since becoming ill. And it’s not for want of trying. Chronic illness is simply unpredictable. I can factor in an extra 30 minutes to get ready, but my interstitial cystitis or inflammatory bowel disease will keep me in the bathroom (my own or public restrooms on the way to/at the destination) for an extra 45 minutes. I can set my alarm (quacking ducks – much more fun than the standard death-horn) with every intention of getting up and getting moving, but my nausea, pain, or fatigue will keep me horizontal for awhile longer. Even if I respond to my quackers, I’m likely to have a seizure and fall back asleep. Seemingly “simple” tasks like responding to emails or completing household chores can also fall victim to my confused haze or lack of spoons. Why am I telling you this? To remind you why it’s February and I’m still talking about December. Thanks for sticking with me!
Onward and upward with the great Tosha recap! If you remember from Chapter One, my husband and I hit the open road in December. We visited friends in Delaware where Mike mauled a puppy, made a stop in Annapolis, MD, and then drove to West Virginia to be with his family for Christmas.
After we left WV, my parents met us back in Virginia Beach with my niece and nephew so that we could have our own Christmas celebration and enjoy some New Year’s Eve festivities. Their amazing Christmas gift to us was our own puppy to maul. She is a beautiful Schweenie (her fur-father was a shih-tzu and her fur-mother was a long-haired miniature dachshund), and she is the smartest, most adorable, best puppy in the world. This is coming from her unbiased mother, so you can take that to the bank. Following a discussion of many names, we christened her Eleanor Roosevelt after the illustrious First Lady.
We had a wonderful week with my family. There were fort-wars (constructed with boxes, fancy duct tape, and spray paint, and defended with dart guns), we visited the Children’s Museum in Portsmouth (where my sister and her husband live – Portsmouth not the museum – but how fun would that be?!), we drove through the light display at the Botanical Gardens in Norfolk, and we introduced my niece and nephew to the classic “Christmas Vacation” movie. On New Year’s Eve we watched the ball-drop. My nephew, Eli, stayed awake to see the 11 change to a 12; my niece, Ella, fell asleep during the last ten seconds of the
count-down (despite my poking). We then went outside to set off some poppers (courtesy of mi madre) and glimpse nearby fireworks. All-in-all, I had a wonderful visit with my family, including some great cuddle time with my niece and nephew. And, my mom once again earns a commendation ribbon for keeping everything coordinated and all of us scrumptiously fed.
That pretty much sums up December. Woo-hoo! Time to move onto January and this great New Year of ours! But not in this post. This post is quite long enough don’t you think? And yes gentlemen, size does matter. So once again, let’s keep that ticker-ticking and the anticipation growing. Come back for Chapter Three and find-out what 2012 has wrought. Hint: It involves my ability to see a brick wall!
In the meantime, I want to know about you! What were some of your favorite memories from this past holiday season? Do you have any tips/tricks for holiday fun when you’re not feeling well? Get your comment on!
And, thanks for reading!
Related articles from this site:
Missed the first Chronically Rediscovered Chapter? Catch Up Here: Chronically Rediscovered Chapter One: Colitis for Christmas and Sky Lanterns for the Soul
Learn a little more about my haze, seizures, and Keppra medication. Keppra- Grape Flavored Brain Drain and Mood Swings in a Bottle
You know those unpredictable bathroom trips mentioned in the beginning? Of course you do – you’re smart! Here’s something you might not know – I’ve even had trouble getting access to a bathroom at a gastroenterology office where I am treated for my Inflammatory Bowel Disease. Crazy right? Right! Read a little bit about this need in Let’s Caca!: Raising Awareness about Crohn’s & Colitis, IBD Symptoms, and Medical Care
Related articles from other sites:
- Chronic Illness and Guilt (rainintorainbows.com): Remember my rant at the beginning of this post about the unpredictable nature of chronic illness? (If not, scroll back up. Go ahead, this writing’s not going anywhere. It’ll be here when you get back). In Chronic Illness and Guilt, Shari, who’s diagnosed with Reflex Sympathetic Dystrophy Syndrome, explores the difficult aspects of having an unpredictable disease and the accompanying guilt that comes with disappointing others.
- Trying to Remember (davidsepilepsy.blogspot.com): In this post I recounted some great memories from December. Chronic illness doesn’t just affect our ability to participate in memorable moments, seizures can also prevent us from holding onto these memories. In Trying to Remember, David discusses his memory difficulties due to his seizures, including his inability to remember his own wedding.