Cimzia! is a short film depicting life with Colitis and treatment with the biologic medication Cimzia. The video stars Schweenie Eleanor Roosevelt and Kitty Detroit, who help me cope with my chronic conditions and pain.
Celebrating Purple Day. How a chronically ill Spoonie, her Dish husband, their fiddle playing cat, and their laughing dog spent Purple Day 2012. Plus a summary of some of Bottled Time’s favorite other Purple Day celebrations. Lots of pictures. Lots of laughs. Lots of awareness raised for seizures and epilepsy. *Disclaimer – the cat does not actually play a fiddle. We don’t own one. We do however have ukuleles, a saxaphone, a guitar, a flute, and a piano.
Epilepsy and seizures can cause feelings of isolation and loneliness. International Purple Day, March 26th, is a day to let those with epilepsy and seizure disorders know that they are not alone. Reasons those with seizures feel alone are discussed along with what can be done for Purple Day to make them feel connected and supported.
Chronic conditions cause a lot of emotional trials. Curiosity can rekindle interest in life and beauty can inspire our subconscious. My efforts to beautify my kitchen with a Mason jar storage system.
Great holiday fun and travels resulted in a typical chronic illness crash. I breathe my way through it, train a puppy, try to read, and discover inspiration on Pinterest despite my epileptic and colitis challenges. My decision for Lasik surgery in spite of my autoimmune diseases is also discussed.
Christmas and New Year’s Eve fun despite chronic illness and its unpredictable nature.
My treatment team, specifically my neurologists, helped to create an extended medical themed Halloween for me. My experience with an Ambulatory EEG.
The Spoon Theory provides a definition of chronic conditions to help explain how the pain, fatigue, and other symptoms affect the life of the chronically sick individual. Spoon Thief is funny poem with pictures based on that theory.