An update on my Chronic Life (including sky diving!) and health since my last post.
Bottling up our thoughts and feelings related to our chronic illness and pain is often necessary. However, it is also important to share these with someone who understands; otherwise, they will suffocate us. Here is one of my chronic confessions. Send me yours to be part of a new section on this blog: Uncorked Confessions.
Celebrating Purple Day. How a chronically ill Spoonie, her Dish husband, their fiddle playing cat, and their laughing dog spent Purple Day 2012. Plus a summary of some of Bottled Time’s favorite other Purple Day celebrations. Lots of pictures. Lots of laughs. Lots of awareness raised for seizures and epilepsy. *Disclaimer – the cat does not actually play a fiddle. We don’t own one. We do however have ukuleles, a saxaphone, a guitar, a flute, and a piano.
Epilepsy and seizures can cause feelings of isolation and loneliness. International Purple Day, March 26th, is a day to let those with epilepsy and seizure disorders know that they are not alone. Reasons those with seizures feel alone are discussed along with what can be done for Purple Day to make them feel connected and supported.
Chronic conditions cause a lot of emotional trials. Curiosity can rekindle interest in life and beauty can inspire our subconscious. My efforts to beautify my kitchen with a Mason jar storage system.
Great holiday fun and travels resulted in a typical chronic illness crash. I breathe my way through it, train a puppy, try to read, and discover inspiration on Pinterest despite my epileptic and colitis challenges. My decision for Lasik surgery in spite of my autoimmune diseases is also discussed.
After the neurologist reviewed my Ambulatory EEG, I’ve been prescribed Keppra for partial epilepsy. Keppra carries some heavy mental and emotional side-effects.
Television can help us cope with the stress in our lives. Sometimes what shows what shows we choose to aid us in this process can be surprising. Especially when life, work, and our relationships are affected by chronic disease. Humor, pictures, and video included.
A devotional for Invisible Illness Week 2011 following the theme: “Deep Breath. Start Fresh.” and focusing on building a divine spiritual connection. Geared toward those with chronic disease and pain. Funny pictures, music, and video included to enhance the experience.
The Spoon Theory provides a definition of chronic conditions to help explain how the pain, fatigue, and other symptoms affect the life of the chronically sick individual. Spoon Thief is funny poem with pictures based on that theory.
A definition of chronic conditions to help explain coping with the symptoms of pain, fatigue, and illness on a daily basis using humor. Pictures and video included.
Although this is not my first experience with injecting medication at home to manage my pain, fatigue and other IBD and arthritis symptoms, it is my first experience with a classic syringe and Cimzia specifically.
Chronic diseases can make us feel very isolated and depressed. Although most people might not be able to relate to our symptoms, we are not alone in our desire to escape the negative difficulties in our lives.
It can be hard to feel God’s love when we are struggling with the symptoms of pain and chronic diseases. We are more likely to feel distant and abandoned. Through our service to others, often in new ways due to our illness, we can also find His Love for us.