An update on my Chronic Life (including sky diving!) and health since my last post.
Bottling up our thoughts and feelings related to our chronic illness and pain is often necessary. However, it is also important to share these with someone who understands; otherwise, they will suffocate us. Here is one of my chronic confessions. Send me yours to be part of a new section on this blog: Uncorked Confessions.
Cimzia! is a short film depicting life with Colitis and treatment with the biologic medication Cimzia. The video stars Schweenie Eleanor Roosevelt and Kitty Detroit, who help me cope with my chronic conditions and pain.
Celebrating Purple Day. How a chronically ill Spoonie, her Dish husband, their fiddle playing cat, and their laughing dog spent Purple Day 2012. Plus a summary of some of Bottled Time’s favorite other Purple Day celebrations. Lots of pictures. Lots of laughs. Lots of awareness raised for seizures and epilepsy. *Disclaimer – the cat does not actually play a fiddle. We don’t own one. We do however have ukuleles, a saxaphone, a guitar, a flute, and a piano.
Great holiday fun and travels resulted in a typical chronic illness crash. I breathe my way through it, train a puppy, try to read, and discover inspiration on Pinterest despite my epileptic and colitis challenges. My decision for Lasik surgery in spite of my autoimmune diseases is also discussed.
Christmas and New Year’s Eve fun despite chronic illness and its unpredictable nature.
Christmas celebrations and December travels despite inflammatory bowel disease and chronic illness flares. Sky lanterns, puppies, and bookstores, oh my!
After the neurologist reviewed my Ambulatory EEG, I’ve been prescribed Keppra for partial epilepsy. Keppra carries some heavy mental and emotional side-effects.
My treatment team, specifically my neurologists, helped to create an extended medical themed Halloween for me. My experience with an Ambulatory EEG.
The symptoms of chronic illness, disease, pain, and the side-effects of medical treatments resemble the monsters of Halloween. Here’s my evidence that my years of coping are doing more than making me resemble one of these beasts.
Television can help us cope with the stress in our lives. Sometimes what shows what shows we choose to aid us in this process can be surprising. Especially when life, work, and our relationships are affected by chronic disease. Humor, pictures, and video included.
The Spoon Theory provides a definition of chronic conditions to help explain how the pain, fatigue, and other symptoms affect the life of the chronically sick individual. Spoon Thief is funny poem with pictures based on that theory.
Although this is not my first experience with injecting medication at home to manage my pain, fatigue and other IBD and arthritis symptoms, it is my first experience with a classic syringe and Cimzia specifically.